Seven-year-old Lily Williams has a genetic condition called Phelan-McDermid syndrome that causes developmental and speech delays. With therapy and effort, the affectionate ponytailed youngster is playing with toys, potty training and using a device to say, “Hello,” and describe herself as “silly.” The huge milestones are matched by big bills for the services Lily receives. They’re paid through the St. Mary’s County family’s private insurance and, until recently, with Medicaid funds.
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April 14, 2022