Thursday, December 5, 2024 | Baltimore, MD
Baltimore, MD
43°
Cloudy
FOLLOW US:

Her son is dying. She hopes the FDA will let her try to save him.

December 5, 2023

In the end, Shannon Moyer McNeil could do nothing to save her children. The Northern Virginia mother lost her daughter Waverly just after she turned 12 and her son Oliver three years later, just before his 12th birthday. Both children were diagnosed with a rare genetic condition called Sanfilippo syndrome. “November and December are challenging times for my family,” McNeil, who lives in Alexandria, told me recently. Within those months, she explained, fall the dates of her children’s births and deaths.

Article Source: Washington Post

The Morning Rundown

We’re staying up to the minute on the issues shaping the future. Join us on the newsletter of choice for Maryland politicos and business leaders. It’s always free to join and never a hassle to leave. See you on the inside.